9 months after the birth of their son, the parents discovered that he was suffering from a very rare congenital disease: craniosynostosis. Their baby will have to undergo a very heavy operation…
“A time bomb”, this is what the parents of little Lucas explained to NeedToKnow.online. Their 9-month-old son contracted a rare birth defect: craniosynostosis. This disease is characterized by a malformation of the skull during its development, one or more skull sutures closing too early. After these sutures are closed, the skull can no longer grow normally. The sutures must normally remain flexible for a few years after the birth of the child to allow its development.
Devastated, the parents of little Lucas decided to talk about it to inform as much as possible about this rare but very dangerous disease. Emma Brazier and Jordan Carter opted for a big operationso that their son does not suffer all the side effects of this disease.
The operation is planned for his 18 months
The doctors cannot operate on the little boy before he is 18 months old and for his parents the wait is very long, even unbearable: “It is an extremely upsetting experience to think that Lucas will need this surgery in the next six months. Thinking about this surgery is very painful and it still overwhelms me as much. But I feel like if we hadn’t opted for surgery, we’d feel like we’re living with a ticking time bomb.”say the parents. If Emma Brazier and Jordan Carter don’t opt for the operation, their son could have serious problems such as seizures, blindness or even brain hemorrhages.
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In addition to health problems, illness is seen
The operation will also consist of a total remodeling of the little boy’s skull, which is currently deformed. Her mother does not regret her choice: “The operation is the best option, thanks to that he will be able to have a healthier and more pleasant life. My husband also emphasized the issues of harassment and bullying he might get if we don’t do the surgery. His self-confidence and self-esteem could be disturbed by the shape of his skull which is really different from the others. The surgeons will try to reform the skull of Lucas, so that his disease is no longer visible.
Very worried, the parents will do everything possible to make as many people as possible aware of this very rare disease…