Mon health space, set up by the law of July 24, 2019 and launched in 2022, allows everyone to manage a personal online account gathering their medical data in a shared medical file (DMP). He will also be able to access various services referenced on a single platform, in particular a messaging system to exchange with caregivers or a calendar to manage his medical appointments.
This service, automatically opened by Medicare to each citizen unless opposed, now allows 90% of policyholders to have a profile. However, according to the ministerial delegation of digital healthonly 8.6 million out of 65.7 million people (12.4%) activated their shared health record a year after its launch.
This still low adoption rate is not surprising. Health professionals have not been sufficiently made aware of this tool, which also remains largely unknown to the general public. Moreover, given the recurring scandals related to data protection and the growing distrust of health institutions, the confidence of users in the platform’s ability to protect their medical data from misuse is not going well. self.
If the shift to all-digital is inevitable, it must therefore, when it affects health, be accompanied by strong guarantees to gain trust. Since health data is very personal information, probably the most sensitive there is, it requires rigorous protection to preserve the relationship of trust and consent between caregivers and patients. And this relationship of trust must be a priority for the authorities, as trust is essential to the legitimacy and acceptance of public actions.
Even after death
In this sense, My health space gives citizens real access to their health data, which is a major step forward. It allows access to consultation reports, hospitalizations, but also to imaging, prescriptions, assessments and any document concerning access to care, but also to medico-social information.
On the other hand, in the current version, users do not have control over their data and, for the most part, do not know it. A patient can certainly hide access to his data from any caregiver, but not from his attending physician; and he cannot delete or archive information other than that which he would have put himself, nor oppose the transfer of data to his DMP without legitimate reason. No archiving or archiving is provided, nor any possibility of deletion, except by the issuer himself when it comes to the patient. Any information placed in this folder will remain there, even after the death of its user; and access to this data will be unlimited in time.
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