“Never have patients felt so fragile and in danger in the face of a bloodless public hospital system”

Tribune. “You don’t rewrite history with the snap of your fingers”, recently underlined the Minister of Health [dans Libération du 27 octobre]. However, neither the 12 billion euros announced on the occasion of the Ségur de la santé, nor the promises to see the arrival of a new generation of caregivers (within an indefinite period) are sufficient to stem the departure of staff from public hospitals. Fragmented rest, irregular schedules, lack of recognition, caregivers can no longer take it and this now affects care more and more heavily.

We expect strong, incentive and immediate measures from women and men politicians, representatives of the State and guarantors of the health of their fellow citizens, of our health.

Alzheimer’s disease, Parkinson’s disease, stroke, epilepsy, Charcot-Marie-Tooth disease, inflammatory neuropathies, multiple sclerosis, amyloidosis, myopathies, spinal amyotrophies, amyotrophic lateral sclerosis, myasthenia gravis, muscular dystrophies … From neuromuscular diseases to muscular dystrophies. neurodegenerative diseases, we are several million sick people and relatives of patients particularly affected by the continuous closure of beds in specialized units of public hospitals.

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The reception and care of these sick people with heterogeneous and complex needs requires a lot of medical and paramedical staff with specific skills. Dressing, washing, eating, getting around, going to the toilet, communicating, being safe, taking treatment are all essential elements, but particularly affected by the lack of personnel.

Should we remember the constitutional value of health protection in our country?

“Sanitary desertion”

It is clear that today, in France, in neurology services, for lack of personnel, the response to the needs of patients is no longer adequate. If we do not want to see a health disaster of an entirely different nature from the one we have just experienced, we must go much faster and much further to attract and retain staff in the care units.

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Although we unfortunately do not have very precise figures, we note that certain services have sometimes had to close more than half of their beds. If the hospitals of the AP-HP are often brought to light, in reality, very few public establishments escape this movement of “sanitary desertion” of an unprecedented scale.

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