soon to be recognized as a Long Term Affection (ALD)

The disease affects one in 10 women and in the majority of patients it is the cause of severe pelvic pain.

The Medical News Agency (APM) has revealed that the government will consider recognizing endometriosis as a long-term condition (ALD). Olivier Véran, Minister of Solidarity and Health, announced to the Senate that he was going to ask his ministry for an assessment of this disease. For many women, this news could be a real recognition in every sense of the word.

If the pathology becomes ALD, the health costs related to the management of the disease will be fully covered. A real chance for the patients because endometriosis, which still has no curative treatment, generates a multitude of examinations and medical appointments (MRI, ultrasound, laparoscopy). Let's not talk about the costs that can quickly climb.

"Endometriosis is a chronic, sometimes disabling inflammatory disease affecting at least one in ten women of childbearing age. Most of the time, it is characterized by very severe pain during menstruation and is often linked to infertility. Despite a very large number of cases, this century-old disease is still too little known and diagnosed late, with a delay of 7 years on average. ", Explains the Endofrance association.

For several months now, ENDOmind France has been asking parliamentarians to include endometriosis in the list of Long Term Affections.

Today, more than 250 parliamentarians support the request, a fact that could have challenged Olivier Véran.

Who are the ALDs?

In France, only 30 diseases are classified as ALD: diabetes, stroke, Parkinson's disease, hemophilia, or paraplegia. These pathologies “whose severity and / or chronic nature require prolonged treatment and particularly expensive therapy, and for which the user fee is waived", Explains the health insurance website.

Still according to EndoFrance, 65% of women affected by this scourge mention consequences for well-being at work, and 40% of them have fertility problems.

"Having pain during your period is not normal" Tsiky tells us about endometriosis

Video by Clara Poudevigne