“I still don’t know what I’m fighting against”, the singer recounts the hell of her daily life

Hélène Ségara is back on the roads! The singer who just celebrated her 53rd birthday last winter is taking part in the Musical comedies with the young generation of artists. This is the opportunity for her to cover some of the titles that cemented her notoriety and performed at the end of the 1990s for the show Notre Dame de Paris. No one has forgotten her role as Esméralda in this musical by Richard Cocciante and Luc Plamondon! While remembering his beginnings and his younger years on the show Seven to Eight broadcast on Sunday May 5 on TF1the singer who had a string of hits over the following decade remembered that famous day when everything changed…

It was in the month ofApril 2013she was preparing to publish an album of virtual duets with Joe Dassin (And if you did not exist). “I came back from Russia where I had worked. I had really worked a lot. And I woke up one morning to literally a curtain in front of my eyes, not understanding what was happening to me.”, she told the camera of the first channel. For the journalist Audrey Crespo-Mara to whom the interview was granted, Hélène Ségara said that from there everything was “chained” : “I had implants in my eyes and a total of around twenty operations. So I was more or less stabilized“.

Hélène Ségara plagued by doubt

Only, without knowing it, she was far from having finished with this rare disease from which she still suffers today. “I could no longer see my phone screen, no longer read”she noticed much later, frightened by the consequences of its effects on her life as a woman, mother and artist. “At that time, I had no other solution than to be hospitalized, to be infused and to have daily care to try to put the brakes on urgently while waiting to find treatment“, she confirmed. Especially since today, Hélène Ségara still does not know what is the nature of the fight she must lead, no name has been able to be put on this illness for the moment. “We said it was a tumor, then we said it was multiple sclerosis. I heard all kinds of things. We looked for everything related to autoimmune diseases, I did lumbar punctures, biopsies, but in fact I still don’t know what I have“she said immediately.

From now on, Hélène Ségara benefits from daily treatment which allows her to travel and even take a plane. But that wasn’t always the case. “Initially, it was infusion treatments that could only be given in hospital”she stressed, while insisting on the fact that it would have been enough to “A few days” more so that she loses both her eyes. “When I started the treatment I have now, I was losing 1/10th per month and I had 3/10ths left. So, I had three months left to find one of the treatments that worked“she remembered, before expressing the happiness felt when learning that a solution had finally been found.

Hélène Ségara lucid about her health

Obviously, the juror of France has an unbelievable talent (M6) can only put things into perspective now. The mother of Raf, Matteo and Maya, sees this difficult experience as a “lesson” and admits that she wishes for more than yesterday “live intensely”. “I want to laugh a lot, I want to enjoy every moment, I want to love a lot, I want to eat delicious things, make delicious food for the people I love. I want to see everything, watch everything while I can”insists the artist with multiple gold records.

In a message published on social networks shortly before the broadcast of his interview in Seven to EightHélène Ségara had denied wanting “dramatize your life”. “I sought the thin line between confiding with a smile and hope, while maintaining my modesty… I would like this interview to silence those who keep thinking that I like to dramatize my situationwhile some people experience pain so much more unbearable than mine…”, she said, while thanking her unwavering support. History does not say, however, whether a new album is in preparation, the latest of which, Karmais due to celebrate its third anniversary in 2024.

Journalist

If writing is a pleasure, being read is even more so. Passionate about pop culture, Jonathan sets the pace in the right tone to always keep you well informed. Attracted by …